RARE-X Definition Series: Real World Evidence & Real World Data

October 14, 2020

What is Real World Evidence?

What is Real World Data?

This RARE-X Definition Series Video explains Real World Evidence and Real World Data, and why they are critical for rare disease research.

Lunch & Learn: Grant Writing 101

Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to […]

During this lunch and learn webinar with Global Genes’ marketing team, you will learn strategies to increase […]

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes on […]

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes […]

Have you wanted to tell your rare disease story as a documentary or a short video? Global […]

FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […]

by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […]

As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […]

As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […]