Before the Diagnosis: Celebrating World Rare Disease Day with Global Genes

February 28, 2015

Global Genes asks that you Wear That You Care this year on February 28th on World Rare Disease Day 2015. Learn more about how you can get involved here.

DEI

Top 10 Takeaways from the 2023 RARE Health Equity Forum

Whether you attended in person or watched the live stream, we hope that you now have ideas […]

Diagnosis

Top 10 Takeaways from the 2023 RARE Advocacy Summit

Did you LEVEL UP while attending or live streaming the 2023 RARE Advocacy Summit? We certainly did! […]

Deals

Cyclo Therapeutics and Applied Molecular Transport Agree to Merge

Rare Daily Staff Cyclo Therapeutics, a clinical stage company focused on developing therapies for rare and neurological […]

Diagnosis

Global Genes Team Collaborates with Homocystinuria Community and Researchers on Report

The Homocystinuria (HCU) community, Dr. Kim Chapman (Children’s National Rare Disease Institute), Dr. Mary Chapman (UPMC Children’s […]

Diagnosis

Breakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month

August is Spinal Muscular Atrophy (SMA) Awareness Month, so Global Genes invited Cure SMA, a Global Advocacy […]

Diagnosis

Five Resources For Grieving

August 30 is National Grief Awareness Day. As there are many types of grief and no two […]

Diagnosis

Autoinflammatory Alliance: Bringing Hope and Changing Lives For Those Living With Autoinflammatory Disease

August is Autoinflammatory Disease Awareness Month. One of the more common rare diseases that falls into the […]

Diagnosis

Autoinflammatory Disease: The Invisible Epidemic

August is Autoinflammatory Disease Awareness Month. One of the more common rare diseases that falls into the […]

Diagnosis

Implementing a Decentralized Clinical Trial Design for Children with SCN2A & SCN8A Developmental and Epileptic Encephalopathies (DEEs)

contribution from Praxis Precision Medicines Praxis Precision Medicines is a clinical biopharmaceutical company with the largest portfolio […]

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Before the Diagnosis: Celebrating World Rare Disease Day with Global Genes

Related

Top 10 Takeaways from the 2023 RARE Health Equity Forum

Top 10 Takeaways from the 2023 RARE Advocacy Summit

Cyclo Therapeutics and Applied Molecular Transport Agree to Merge

Global Genes Team Collaborates with Homocystinuria Community and Researchers on Report

Breakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month

Five Resources For Grieving

Autoinflammatory Alliance: Bringing Hope and Changing Lives For Those Living With Autoinflammatory Disease

Autoinflammatory Disease: The Invisible Epidemic

Implementing a Decentralized Clinical Trial Design for Children with SCN2A & SCN8A Developmental and Epileptic Encephalopathies (DEEs)

Stay Connected