February 3, 2012
Gaucher Type 3 — Difficulty In Finding A Diagnosis For Rare Disease
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December 29, 2011
Are You a Blogger? Join our Blog Hop for RARE disease!
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December 13, 2011
Brad Paisley Lends Voice to New Song “Hard Life” to benefit A-T Children’s Project
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November 3, 2011
Your Invited! Regional Essential Health Benefits Sessions Sponsored by HHS
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September 21, 2011
Better Access to Patient Longitudinal Data Promises Greater Research Latitude
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January 26, 2011
GLOBAL GENES PROJECT ANNOUNCES “WEAR THAT YOU CARE™” DENIM AWARENESS CAMPAIGN FOR RARE DISEASE DAY 2011
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September 29, 2010
Families look to orphan drug development at University of Minnesota
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September 28, 2010
NIH Coalition of Patient Advocacy Groups Convene – Global Genes Represented
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June 29, 2010
Children's Rare Disease Network Partners With Medpedia.com To Create Rarespace
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May 27, 2010
Orphan Drugs Rare Disease Opportunity, Investors Eye
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October 1, 2009
Are vacations allowed when you've got a sick kid?
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