Tag: disease

A total of 17 posts are filed under disease
What is Loss?
Death.  It’s one of the most taboo subjects.  If you ever want to end a conversation, start talking about death.  Death and the sadness… Continue Reading
Gaucher Type 3 — Difficulty In Finding A Diagnosis For Rare Disease
My son, Noah, now 15 years old, first started having health problems as an infant. First, he had asthma, then chronic pneumonia, and as he… Continue Reading
Are You a Blogger? Join our Blog Hop for RARE disease!
We are calling all bloggers to join us in a RARE disease focused blog hop on Monday, January 30th which will be 30 days before World RARE… Continue Reading
Brad Paisley Lends Voice to New Song "Hard Life" to benefit A-T Children’s Project
Brad Paisley sings new song written by Joe Kindregan, A-T patient BRAD PAISLEY LENDS VOICE TO NEW SONG “HARD LIFE” Written By Joe… Continue Reading
Your Invited! Regional Essential Health Benefits Sessions Sponsored by HHS
The Affordable Care Act ensures Americans have access to quality, affordable health insurance.  To achieve this goal, the law ensures plans… Continue Reading
Better Access to Patient Longitudinal Data Promises Greater Research Latitude
Patient longitudinal data which are collected over long periods of time reveal a more complete picture of many rare diseases than temporal… Continue Reading
Statistics Show 95% of Rare Diseases Have No FDA Approved Drug Treatments; Only 352 New Drugs Developed and Approved For Tens of Millions of… Continue Reading

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