Tag: fibrous dysplasia

A total of 4 posts are filed under fibrous dysplasia
Children’s Growth Awareness Day hosted by The MAGIC Foundation
Organization: The MAGIC Foundation Submitted by: Jamie Harvey On September 28, 2012, the MAGIC Foundation and social media are changing… Continue Reading
The Yellow Bird Project for #RareDisease / @MarbleRoad @YBP by @SarahGrothjan
When someone asks me who I am or what I do, I typically default to any combination of journalist, student, writer, intern. However, there is… Continue Reading
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15 Million… Continue Reading
Sometimes dogs are the best medicine, for bone pain.
2:32 a.m. That’s the time of night (or super early morning) that Billy wakes up. I hope it’s a bad dream from too much Scooby-Doo. I… Continue Reading
be-a-guest-blogger

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm