Tag: global genes

A total of 123 posts are filed under global genes
2017 RARE Patient Impact Grant Awardees
The RARE Patient Impact Grant Program offers support groups and nonprofits that care for patients affected by rare diseases the… Continue Reading
Global Genes® and Horizon Pharma plc Partner to Offer Nephropathic Cystinosis Scholarships
Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading
Celebrate World Rare Disease Day by Changing Your Profile Picture
Step 1. Upload a photo Step 2. Pick a frame  Step 3. Resize image  Step 4. Preview and save your photo Step 5. Save your photo by… Continue Reading
New Toolkits by Global Genes Educate Patients on Gene Therapy and Health Insurance
Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything from… Continue Reading
Happy Holidays From Global Genes
Our greatest hope for you this year is that you’re home, out of the hospital, enjoying each day with family and friends. We know that… Continue Reading
Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community
ALISO VIEJO, Calif. — December 8, 2016 — Global Genes®, one of the world’s leading nonprofit rare disease patient advocacy… Continue Reading
A Look Back: Our 2016 Tribute to Champions of Hope
This year’s 2016 Tribute to Champions of Hope brought out many stars in the rare disease community. We were delighted to see so many… Continue Reading
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