Tag: global genes

A total of 138 posts are filed under global genes
A Task for Tyler- Finding Treatments for SSADH and Hypotonia
Author: Jason Martin Life is always a task! But that task is amplified tenfold for someone like my son Tyler who suffers from an extremely… Continue Reading
Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face
Rare Daily Staff Two Congressmen have introduced the Rare Disease Advancement, Research, and Education (RARE) Act, a bipartisan bill that… Continue Reading
The Benefits of Patient-to Patient Interactions
Many diseases can cause a range of emotional challenges for patients, including anxiety, isolation, and depression. A wide range of research… Continue Reading
Generation Bio Raises $100 Million to Advance Re-Dosable Gene Therapy
Rare Daily Staff Generation Bio said it closed a $100 million series B financing to advance to the clinic its first two therapeutics… Continue Reading
Rare Partnering and Investor Forum – 9/14/2017 in Irvine, CA
Here’s all the info on our first ever Rare Disease Partnering Event! In this “Shark Tank” styled event we’ll welcome new ideas to… Continue Reading
Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the BIO International Convention
Text the Word “RARE” to 565-12 to Generate a Donation to Global Genes DUBLIN, Ireland, June 20, 2017 (GLOBE NEWSWIRE) — Horizon… Continue Reading
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading