Tag: Non-Profit

A total of 10 posts are filed under Non-Profit
RARECast: Non-Profit Drug Company Seeks to Advance Rare Disease Therapies
  The high cost of drug development and the small populations for individual rare diseases can make it difficult to attract drug companies… Continue Reading
Waves of Impact – Making a Difference One Wave At A Time
Sun, Sand, Surf and Sam!  Several years ago, I had seen news stories about surf camps for children with autism. I even researched them on… Continue Reading
Families look to orphan drug development at University of Minnesota
Orphan diseases affect 25 million people in the United States. By Taylor Selcke, MN Daily.com For Michael Zimanske, years of holidays and… Continue Reading
National Institutes of Health news that caught my eye this week.
Here are a few NIH related items that Children’s Rare Disease Network folks might find interesting. 1. Share your health experiences with… Continue Reading
Save the Date! Conferences of interest to parent advocates!
Here are some upcoming conferences that parent advocates and advocacy groups might be interested in: Gov 2.0 Expo in Washington, DC on… Continue Reading
Nominate Your Rock Star of Science!
Geoffrey Beene Gives Back®’s hip new campaign, “Rock Stars of Science” (a.k.a Rock S.O.S) is making its mark, and The Children’s… Continue Reading
A Rare Disease Thriller?
If you like thrillers, you’ll love this article. If you like thrillers within thrillers, you’ll like it even more:… Continue Reading

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:30 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 5:00 pm - 9:30 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:00 pm - 5:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm