July 2, 2017
Rare Patient Starts Card Project for Hospitalized Kids
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April 7, 2017
RARECast: Non-Profit Drug Company Seeks to Advance Rare Disease Therapies
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June 7, 2013
Waves of Impact – Making a Difference One Wave At A Time
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September 29, 2010
Families look to orphan drug development at University of Minnesota
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October 6, 2009
National Institutes of Health news that caught my eye this week.
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September 8, 2009
Save the Date! Conferences of interest to parent advocates!
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September 3, 2009
Nominate Your Rock Star of Science!
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July 13, 2009
Searching for a Cure For Duchenne – Patient Perspective Podcast #1
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February 23, 2009
World Rare Disease Day 2009 Efforts Underway!
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February 17, 2009
Albany High School Students Unite To Raise Money For World Rare Disease Day 2009
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