Tag: _Policy

A total of 26 posts are filed under _Policy
NYT: Senate Confirms Scott Gottlieb to Head F.D.A.
The Senate voted 57 to 42 on Tuesday to confirm Dr. Scott Gottlieb as commissioner of the Food and Drug Administration, where he will be… Continue Reading
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
RARECast: Rare Disease Advocates Push for Incentives to Drugmakers Pulled from Cures Act
  Legislation that would provide incentives to drugmakers to repurpose existing pharmaceuticals as rare disease treatments is once again in… Continue Reading
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
Facebook announced a new feature this week that allows users to search their address to find local representatives as a means to easily… Continue Reading
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug Administration
Global Genes is joining the rare community to support Dr. Scott Gottlieb’s nomination to serve as Commissioner of Food and Drug… Continue Reading
21st Century Cures Act Becomes Law!
From the EveryLife Foundation After a multi-year advocacy campaign, President Obama signed the 21st Century Cures Act into law! This bill… Continue Reading
Save the Date for Rare Disease Week on Capitol Hill: February 27th – March 2nd
The Rare Disease Legislative Associates are excited to host patients, caregivers, physicians and other advocates from across the country at… Continue Reading

Follow us on Twitter

Upcoming Events

Sep 14

RARE Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

RARE Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

RARE Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

RARE Champion of Hope Awards

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

RARE Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm