February 5, 2019
Sen. Bernie Sanders Investigates $375,000 Price of LEMS Drug
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March 6, 2018
Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face
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June 22, 2017
Gottlieb’s Aggressive Plans to Streamline the Orphan Drug Review Process
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June 18, 2017
Law to Expand and Improve Newborn Screening Enacted in Florida
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June 2, 2017
Government Submits Rare Disease Policy to Delhi HC
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May 16, 2017
NYT: Senate Confirms Scott Gottlieb to Head F.D.A.
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April 18, 2017
Join BIO Action! A New Way to Advocate
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April 14, 2017
RARECast: Rare Disease Advocates Push for Incentives to Drugmakers Pulled from Cures Act
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April 4, 2017
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
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April 3, 2017
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug Administration
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December 15, 2016
21st Century Cures Act Becomes Law!
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November 25, 2016
Save the Date for Rare Disease Week on Capitol Hill: February 27th – March 2nd
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