February 5, 2019
Sen. Bernie Sanders Investigates $375,000 Price of LEMS Drug
March 6, 2018
Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face
June 22, 2017
Gottlieb’s Aggressive Plans to Streamline the Orphan Drug Review Process
June 18, 2017
Law to Expand and Improve Newborn Screening Enacted in Florida
June 2, 2017
Government Submits Rare Disease Policy to Delhi HC
May 16, 2017
NYT: Senate Confirms Scott Gottlieb to Head F.D.A.
April 18, 2017
Join BIO Action! A New Way to Advocate
April 14, 2017
RARECast: Rare Disease Advocates Push for Incentives to Drugmakers Pulled from Cures Act
April 4, 2017
Town Hall Launch Gives Platform for Patient Advocacy – Will You Inbox Your Reps?
April 3, 2017
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug Administration
December 15, 2016
21st Century Cures Act Becomes Law!
November 25, 2016
Save the Date for Rare Disease Week on Capitol Hill: February 27th – March 2nd