February 7, 2014
Stephen Groft, Champion of Rare Diseases Research, Retires
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October 24, 2013
Pain in Children Goes Largely Untreated
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July 15, 2013
Mother Dives into Research on Kearns-Sayre Syndrome for Affected Child
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July 9, 2013
2 Clicks, 1 Vote Equals $100,000 for Sanfilippo Research, Vote Elisabeth Linton
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May 25, 2013
Children With Rare Disease CDG Don’t Have Mutation in Every Cell Type
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November 26, 2012
Cracking The Code to Rare Diseases with Human Tissue Research
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August 24, 2012
Backstage with Two Hearts Rock: Making a radical difference for rare disease
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July 7, 2012
National Institutes of Health Marks $145 Million To Help Patients with Undiagnosed Rare Diseases
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June 29, 2012
Accessing Rare Disease Data using the ODDT App available through iTunes
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February 22, 2012
Meet Mabel – A Child With An Undiagnosed Rare Disease
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December 11, 2011
Rare Disease Research at the Center for Applied Genomics at CHOP
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November 8, 2011
PATIENTSLIKEME and R.A.R.E Project Unite To Find and Connect Patients with Rare Diseases
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