October 12, 2022
Empowering the Next Generation Rare Disease Advocate
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July 14, 2022
Helping Hands for GAND Hosts 3rd Biennial Gathering & Scientific Conference
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June 3, 2022
RARE Drug Development Symposium to have daily morning Fireside Chats
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June 3, 2022
RARE Drug Development Symposium: How industry leaders are disrupting innovation
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April 5, 2022
Foundation Alliance Upgrades to Global Advocacy Alliance
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February 7, 2014
Stephen Groft, Champion of Rare Diseases Research, Retires
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July 15, 2013
Mother Dives into Research on Kearns-Sayre Syndrome for Affected Child
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July 9, 2013
2 Clicks, 1 Vote Equals $100,000 for Sanfilippo Research, Vote Elisabeth Linton
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May 25, 2013
Children With Rare Disease CDG Don’t Have Mutation in Every Cell Type
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November 26, 2012
Cracking The Code to Rare Diseases with Human Tissue Research
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August 24, 2012
Backstage with Two Hearts Rock: Making a radical difference for rare disease
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June 29, 2012
Accessing Rare Disease Data using the ODDT App available through iTunes
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