Finding your Fundraising Strategy

September 1, 2022

Most likely you have a need for this toolkit, Finding your Fundraising Strategy, because you or a loved one has a rare disease and you want to make some kind of change. As you prepare to use the tools in this kit, we want you to know that you are not alone. We are in this together. It is our hope that the personal stories, resources, tips, and suggestions for self-reflection in this guide will be the path to making change for your rare disease more manageable.

While we believe you will benefit from reading all of the material in this toolkit, we don’t want to overwhelm you. The articles do not have to be read in order. We’ve included a table of contents to make it convenient for you to find the information you are most interested in at this time.

We know, all too well, that there is a huge need for more research, support, education and awareness in the rare community. Having the support of a large group of dedicated individuals is
a good start; but to really bring about change, rare patient organizations need financial resources. The articles, tools and rare patient experiences included in this toolkit can help you maximize your fundraising potential!

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