Support Lunch & Learn: Grant Writing 101 Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to […] Read more
Support Lunch & Learn: Marketing Strategies And Best Practices During this lunch and learn webinar with Global Genes’ marketing team, you will learn strategies to increase […] Read more
Diagnosis Global Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C. Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes on […] Read more
Diagnosis Global Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes […] Read more
Diagnosis RAREly Told Stories Workshop Have you wanted to tell your rare disease story as a documentary or a short video? Global […] Read more
Diagnosis Fibrous Dysplasia Diagnosis Inspires Camryn FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […] Read more
Diagnosis Meet Wiley, an Angelman syndrome warrior by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […] Read more
Drug Development Beginner’s Guide to Community Activation — RARE Advocacy Summit 2023 As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […] Read more
Drug Development Spinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […] Read more