Challenge Your Limits

September 11, 2020

A panel of strong, creative patients and advocates moderated by The Two Disabled Dudes will discuss how they thrive while navigating life with a rare disease. Speakers: Kyle Bryant, Sean Baumstark, Onno Faber, Neena Nizar, PhD, Katie Stevens

Support

Lunch & Learn: Grant Writing 101

Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to […]

Support

Lunch & Learn: Marketing Strategies And Best Practices

During this lunch and learn webinar with Global Genes’ marketing team, you will learn strategies to increase […]

Diagnosis

Global Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C.

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes on […]

Diagnosis

Global Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes […]

Diagnosis

RAREly Told Stories Workshop

Have you wanted to tell your rare disease story as a documentary or a short video? Global […]

Diagnosis

Fibrous Dysplasia Diagnosis Inspires Camryn

FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […]

Diagnosis

Meet Wiley, an Angelman syndrome warrior

by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […]

Drug Development

Beginner’s Guide to Community Activation — RARE Advocacy Summit 2023

As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […]

Drug Development

Spinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit

As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […]

Stay Connected

Facebook Twitter Instagram Youtube

Challenge Your Limits

Related

Lunch & Learn: Grant Writing 101

Lunch & Learn: Marketing Strategies And Best Practices

Global Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C.

Global Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week

RAREly Told Stories Workshop

Fibrous Dysplasia Diagnosis Inspires Camryn

Meet Wiley, an Angelman syndrome warrior

Beginner’s Guide to Community Activation — RARE Advocacy Summit 2023

Spinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit

Stay Connected