Coping with the Challenge of Rare Disease, With or Without a Diagnosis — 2023 RARE Advocacy Summit

As part of the Empowering the RARE Individual track from the 2023 RARE Advocacy Summit, this panel, Coping with the Challenge of Rare Disease – With or Without a Diagnosis, provides practical strategies for managing symptoms, coordinating care across many specialties, prioritizing mental health, and navigating the diagnostic journey. Hear from our panel of rare patients and mental health professionals who will share their unique experiences, insights, and resources.

Moderator:
Albert Freedman, PhD Psychologist, Rare Counseling

Panelists:
* Adam Johnson
Rare Disease DadVocate

* Caroline Cheung-Yiu
Founder, CURE

* Stephanie Yin, MS
Psychotherapist, RareMinds