Create Your Strategy: The RARE Research Roadmap — 2023 RARE Advocacy Summit

November 29, 2023

As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, this panel will teach organizations how to create a research strategy and build a toolbox of what researchers will need to progress research, and discover and advance potential therapies.

Karmen Trzupek, MS, CGC
Senior Director, Scientific Programs, Global Genes

* Debbie Requesens, PhD
Jump Start Program Director, UPenn Orphan Disease Center

* Rachel Groth, PhD
VP Research, BridgeBio Pharma

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