Developing Partnerships Among Rare Communities and Individuals

September 11, 2020

There are significant advantages to be gained from partnerships where individuals and groups work together – combining resources, offering complementary activities, and expanding target audiences. Meet experts that have cultivated strong partnerships between patients, advocacy groups and other stakeholders. Discover how these organizations started and their plans to build awareness, connect patients, and impact policy.


Speakers: Julia Jenkins, Angela, Ramirez-Holmes, Kari Rosbeck, Tania Simoncelli


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