Effective Communication with Patient Partners: 2022 RARE Health Equity Summit

November 15, 2022

Effective Communication with Patient Partners was a session at the 2022 RARE Health Equity Summit.

How can industry partners and researchers become more patient-centric? This session discusses the needs of patients and advocates that industry can address, and when to bring patients into the conversation, and specifically how to talk to underserved populations who already have a mistrust of industry.

The RARE Health Equity Summit, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and biases felt by patient communities. The 2022 Health Equity Summit was held in Atlanta, Georgia

Matt Flesch VP Communications and Patient Communications, Horizon Therapeutics

* Terri Booker, JD
Sickle Cell Advocate, Sick Cells

* Analy Navarro
Founder & President, BA HERO

* Sarita Edwards
CEO & President, E.WE Foundation

* Jon Rodis
National Disability and Medical Advocate for Rare Disorders

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