Global Equity & Inclusion: Access to Diagnostic Tools & Expertise, Clinical Trials & Treatments – HES 2022

Global Equity & Inclusion: Access to Diagnostic Tools & Expertise, Clinical Trials & Treatments was a session at the 2022 RARE Health Equity Summit.

What are some of the barriers in rare disease health equity that are found at a global level? Topics include availability of healthcare providers, working alongside cultural and traditional healers, and financing advanced healthcare needs.

The RARE Health Equity Summit, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and biases felt by patient communities. The 2022 Health Equity Summit was held in Atlanta, Georgia

Moderator:
Lynn Parish
Head of Health Equity Alliances and Partnerships, Center for Health Equity and Patient Affairs, Takeda

Panelists:
* Charles Hammond, MD, MPhil, FWACP, FGCP
Consultant Pediatric Neurologist, Komfo Anokye Teaching Hospital, Kumasi, Ghana
Senior Lecturer, School of Medicine and Dentistry, Kwame Nkrumah University of Science and Technology, Kumasi, Ghana

* Plinio Gherardi
Director of International Relations, Casa Hunter – Brazil

* Vicky Arteaga, MBA
Treasurer / Latin America Director, SynGAP Research Fund

* Durhane Wong-Rieger, PhD
President & CEO, Canadian Organization for Rare Disorders