Power of Partnering: Children’s Hospital Colorado — 2023 RARE Advocacy Summit

January 19, 2024

As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, this session will outline collaborative research models and case studies involving Children’s Hospital Colorado, including its Neurogenetics Clinic in partnership with STXBP1 Foundation, SLC6A1 Connect, Ring14 USA and Project 8p.

Power of Partnering: Children’s Hospital Colorado

Scott Demarest, MD
Associate Professor, Pediatrics and Neurology, Children’s Hospital Colorado

* Melissa Hioco
Development Director, STXBP1

* Yssa DeWoody, PhD
Co-Founder, Treasurer, Director of Research, Ring 14 USA

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