Videos

Pre RDDS Webinar: What Does It Take to Become a Research-Ready Organization?

May 12, 2022

This is the first in a series of three videos in conjunction with the Rare Drug Development Symposium, presented by Global Genes, in conjunction with The Orphan Disease Center of the University of Pennsylvania.

Understanding the research process and making sure you have the right pieces in place can attract researchers and industry investors. This webinar will cover terms and concepts you need to know to prepare your community to engage with researchers and biotech, including:

  • The building blocks of basic and translational research and clinical trials
  • Role of advocates in gathering data, improving diagnosis, and expanding awareness
  • Hows and whys of patient endpoint selection
  • Working with regulatory bodies
  • Getting up to speed on new treatments and innovative trial model

Featured Speaker:
Karsten Baumgaertel
Associate Director, Translational Biology

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