The Diversity of Diversity: 2022 RARE Health Equity Summit

The Diversity of Diversity was a session at the 2022 RARE Health Equity Summit.

How do the challenges in rare disease diversity differ among various communities? Panelists from industry and the FDA discuss how these barriers differ by population, and what solutions may exist.

The RARE Health Equity Summit, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and biases felt by patient communities. The 2022 Health Equity Summit was held in Atlanta, Georgia

Moderator:
Daron Watts, JD
Managing Member, The Watts Group LLC

Panelists:
* Eric Dube
President & CEO, Travere Therapeutics

* R.A. Sessions, III
Founder, Taysha Gene Therapies

* RDML Richardae Araojo, PharmD, MS
Associate Commissioner for Minority Health, Director, Office of Minority Health and Health Equity
U.S. Food and Drug Administration

* Sandra Retzky, DO, JD, MPH, MBA
Director, Office of Orphan Product Development, Office of the Commissioner
U.S. Food & Drug Administration