Track 3: Show Your Data What Do You Need To Have Before Approaching Industry

Patient advocacy organizations can learn what they need to have before they approach industry, including structuring and developing collaborations, starting and maintaining patient registries, and patient-reported outcomes.

Speakers:
Sarah Boyce
Chief Business Officer
Ionis Pharmaceutics

Robert H. Ring, Ph.D.
Chief Executive Officer
Vencerx Therapeutics

This session was recorded during the 2017 RARE Patient Advocacy Summit.