Using Data Collection to Improve Outcomes — 2023 RARE Advocacy Summit

December 19, 2023

As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, Using Data Collection to Improve Outcomes will teach organizations how a well-designed data collection program can help improve clinical care, create disease progression models, identify mechanistic changes and target therapies and windows of efficacy.

Simon Frost
CEO, Tiber Capital Group

* Chandler Crews
Founder, The Chandler Project

* Luke Rosen, MS
Founder, KIF1A.ORG

* Nasha Fitter
VP Real World Evidence and Ciitizen Platform, Invitae

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