As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, Using Data Collection to Improve Outcomes will teach organizations how a well-designed data collection program can help improve clinical care, create disease progression models, identify mechanistic changes and target therapies and windows of efficacy.
Moderator:
Simon Frost
CEO, Tiber Capital Group
Panelists:
* Chandler Crews
Founder, The Chandler Project
* Luke Rosen, MS
Founder, KIF1A.ORG
* Nasha Fitter
VP Real World Evidence and Ciitizen Platform, Invitae
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