Working Nicely in the Same Sandbox — 2023 RARE Advocacy Summit

November 16, 2023

As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel talks about collaborating instead of competing. Three organization leaders in the MPS community have developed a collaborative relationship by focusing on shared goals and passion for the patient community. Find out how foundations can work together and what you can do as a leader to produce this cohesive relationship in your community.

Kim Stephens
Executive Director, Joseph Muenzer’s MPS Research and Treatment Center of UNC President, Project Alive

* Kristin McKay
Executive Director, Project Alive

* Mark Dant
Executive Director, The Ryan Foundation for Rare Disease Research


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