World Rare Disease Day 2014 Planning Webinar

carerareWorld Rare Disease Day 2014 Planning Webinar:  Ideas and Suggestions to Host Your Own World Rare Disease Day Event

(view recorded webinar, download slides)

With World Rare Disease Day right around the corner (February 28th), this session explored event ideas to create awareness for your specific rare disease as well as the entire rare disease community as a whole.


  • Julie Cunningham, Autoinflammatory Alliance
  • Cassie Johnston, Alstrom Angels
  • Ilana Jacqueline, Global Genes
  • Julia Jenkins, Rare Disease Legislative Advocates
  • Amy Grover, Global Genes

Moderator: Carrie Ostrea, Global Genes

Sponsored by: