Global Genes is a 501c3, nonprofit whose mission is to connect, empower and inspire the rare disease community. We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease. Join our team! Current openings are listed below. If interested, please send your resume and cover letter of interest to [email protected].
The Technology Director is expected to maintain an infrastructure that supports expanded growth, security, ease-of-use, and internal efficiency. The Director of IT will directly influence the direction of IT in new and existing products and systems, as well as upcoming integration efforts with new initiatives. Reporting into the VP of Strategic Advancement and working closely with the executive team, we expect you to bring a strategic mindset for budget management, technology roadmaps, capacity and inventory management and planned solution implementation. We are looking for a hands-on technology lead who passion and experience to help us drive and support one of the most innovative, fastest-paced areas of life sciences and healthcare. You will be responsible for building and integrating technology into a robust, stable, secure cloud infrastructure and oversee managed service providers working with us that range from CRM to community and case management systems, as well as increasing our impact sustainability through helping assess and improve our project monitoring and evaluation tools. Learn more about the role HERE.
RARE Concierge Manager/Navigator
The Rare Concierge Case Counselor/Navigator is a role at Global Genes that speaks to the heart of what we are here to do, providing service and support directly to our families and foundations. Support services are an essential team at Global Genes. The work is directly visible in the rare community. This role requires a confident, poised servant-leader who is a great listener that takes the time to understand how to best deliver a response. Acting as a creative problem solver, an ideal candidate establishes and builds lasting relationships and confidence in Global Genes. Attention to detail and responsive customer service are essential skills. This role works directly by phone, web video, electronically and occasionally in-person to respond to inquiries that come to Global Genes. After assessing the need or request, the counselor/navigator will follow through to resolution or connect inquiry to the next step in a timely and respectful way. May arrange genetic counseling support, refer to educational offering of Global Genes or other, match inquiry directly to one of our 700 foundation members for specific disease support or other. Each case is unique and the role of Global Genes is to assist and help that individual be and feel heard, get answers and be respected. Learn more about the role HERE.
Senior Human Resources Manager
Our plan is to engage a part-time senior HR professional who works well in a mostly virtual environment, has worked in healthcare or for a services organization connected to healthcare, and has some connection to our mission. Our preference would be to have this experienced professional engaged for an initial 6-month period, and then determine our needs moving forward – which may include continued engagement or a need to help identify, bring in and train an HR manager that can step in and take on leadership of the function, with some room to grow. Senior HR Manager responsibilities include overseeing the recruitment process, designing company policies and setting HR objectives. You will also help shape our employment strategy. To be successful in this role, you should be familiar with HR technology, including payroll systems and Applicant Tracking Systems. Learn more about the role HERE.