Global Genes is a 501c3, non-profit whose mission is to connect, empower and inspire the rare disease community. We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease. Join our team!

Current Openings

Online Community Manager – We are currently seeking a community manager to join our team of passionate rare disease advocates. Reporting to the COO and collaborating with the marketing team, the online community manager is a digital-savvy, passionate patient advocate who manages the day-to-day operations of Global Genes’ online communities – with a primary focus on the RARE Portal – Global Genes’ online network of rare disease patients and advocates. The online community manager connects the dots for a holistic user experience, focusing on moderating and managing digital engagement to support the goals, KPIs and strategic objectives of the organization. As a Global Genes manager, you fully immerse yourself in problem-solving, draw insights from data and develop recommendations to empower the rare disease community. Candidates can submit resumes to  View the Job Description