Global Genes is a 501c3, nonprofit whose mission is to connect, empower and inspire the rare disease community. We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease. Join our team! Current openings are listed below. If interested, please send your resume and cover letter of interest to humanresources@globalgenes.org.

 

Office Manager

This role is responsible for managing office administration and procedures in order to ensure organizational effectiveness, efficiency and safety. This role calls for an energetic, adaptable and self-starting professional who enjoys having multiple responsibilities to manage each day. Experienced in leading a wide range of administrative and executive support related tasks and attention to detail and customer service are essential skills. Reliability and discretion are also important as this role will often be privy to confidential matters. Must be able to work from our Aliso Viejo office. 

 

Corporate Engagement Director

This position is responsible for cultivating relationships and fundraising for the Global Genes RARE Corporate Alliance and our core educational resources. As a steward of our corporate relationships, this business development role consists of outreach to new donors as well as maintaining relationships with current donors. This role acts with a high degree of independence and understanding of industry and individual donor trends and challenges to propose possible solutions and collaborations. The Corporate Engagement Director will be the primary contact with industry donor patient advocacy leaders and must be able to travel to relevant industry conferences and donor offices on a regular basis. He/she will also work closely with Global Genes senior leadership initiate and determine strategic partnership opportunities for our long-term, sustainable programs. This role also provides active leadership and support of the RARE Corporate Alliance as the organization develops globally scalable programs and services that serve the rare disease community.

 

Senior Manager, Media and Events Sponsorships

Global Genes is looking to expand our presence through our online content (i.e., podcasts, articles, newsletters) and through our live events held locally, nationally and globally.  We are seeking a mid-level business development manager to nurture new and established relationships to sponsor our events through exhibit booths and other sponsorship opportunities as well as online content. The successful candidate must be passionate about working in the media and event space, and have the ability to help new and existing sponsors (i.e., healthcare, biotech, technology and consumer) see the value in supporting education, tools and resources for rare disease communities. This role acts with a high degree of independence to identify opportunities and develop partnerships for sponsorship solutions. The Senior Manager, Media and Event Sponsorships must be able to travel to relevant industry conferences and sponsor offices on a regular basis.