Tag: Community

A total of 4 posts are filed under Community
Action Alert: Patient Support Needed for Letter to Centers for Medicare and Medicaid Services (CMS)
FOUNDATION LEADERS: Please consider adding your organization to a letter we will be sending to the Centers for Medicare and Medicaid… Continue Reading
TheHuntingtonsPost.org – The First Newspaper for Huntington’s Disease
Organization: The Huntington’s Post Submitted by: MELISSA BILIARDI The Huntington’s Post is the first online newspaper FOR the… Continue Reading
Are You a Blogger? Join our Blog Hop for RARE disease!
We are calling all bloggers to join us in a RARE disease focused blog hop on Monday, January 30th which will be 30 days before World RARE… Continue Reading
European Conference on Rare Diseases 2010 – From Policies to Effective Services for Patients
ECRD 2010 - From Policies to Effective Services for Patients - was the occasion to discuss strategic issues for the rare disease community… Continue Reading

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