Tag: Duchenne

A total of 10 posts are filed under Duchenne
Screen Shot 2015-01-25 at 9.38.20 AM
Duchenne Community Finds Hope in Anaheim Ducks Captain Ryan Getzlaf and Hawken Miller
As Ryan Getzlaf loads a baby seat into the trunk of his white Mercedes S63, a pack of young fans swarms him in hopes of an autograph, a… Continue Reading
Pfizer Initiates Phase 2 Study of PF-06252616 in Duchenne Muscular Dystrophy
Pfizer Inc. (NYSE:PFE) announced today enrollment of the first patient in a multicenter Phase II clinical trial of the investigational… Continue Reading
Screen Shot 2014-11-20 at 2.42.28 PM
Parent Project Muscular Dystrophy Names Baltimore’s Kennedy Krieger Institute a Certified Duchenne Care Center
 Kennedy Krieger Institute in Baltimore, Maryland was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy… Continue Reading
Duchenne Muscular Dystrophy Experiment in Dogs Restores Key Dystrophin Levels
A study entitled “Forelimb Treatment in a Large Cohort of Dystrophic Dogs Supports Delivery of a Recombinant AAV for Exon Skipping in… Continue Reading
Cure Duchenne & The Duchenne Therapy Network Partner to Provide Training to Physical Therapists and Families
Organizations partnering for the united goal of benefiting the community at large is a rare and wonderful thing. We’re thrilled to see… Continue Reading
Screen Shot 2014-03-07 at 2.34.02 PM
Urge the FDA to Say YES to Accelerated Approval For Therapies For Duchenne.
We urge the Food and Drug Administration (FDA) to use the Accelerated Approval pathway for approval and access to safe, effective therapies… Continue Reading
MDA logo_FMD
Patient Tools: MDA’s List of Neuromuscular Disease Descriptions
Below is a general overview of the characteristics of the neuromuscular diseases that affect children and teens. The disorders are grouped… Continue Reading
Share Your Patient Story

Follow us on Twitter