Connect with like-minded patients and advocates across the globe
Engage with members of your disease community, share resources and get involved.
Join Our Community
Connect and engage with others like you through discussions. Would you like an invitation to join our new RARE Portal community?Join Our Community
Try our free one-on-one service for patients looking for information and resources on their rare disease.Get Personalized Support
Global Advocacy Alliance
Our partners include nonprofit, government, academic, research, service, and industry organizations that believe collaboration is the key to positive change. Join us.
Rare Corporate Alliance
We are a coalition of rare disease industry stakeholders committed to collaboration between industry and patient communities to improve and expedite access to effective therapies for all rare patients.
Our Upcoming Events
Rare Entrepreneur Bootcamp
April 26, 2023 – April 28, 2023Details
Rare Drug Development Symposium 2023: Collaborate — Go Farther, Together
May 1, 2023 – May 3, 2023
RARE Health Equity Forum
September 18, 2023 – September 19, 2023
2023 RARE Advocacy Summit
September 19, 2023 – September 20, 2023
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