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Connect with like-minded patients and advocates across the globe
Engage with members of your disease community, share resources and get involved.
Join Our Community
Connect and engage with others like you through discussions. Would you like an invitation to join our new RARE Portal community?
Join Our CommunityRare Concierge
Try our free one-on-one service for patients looking for information and resources on their rare disease.
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Global Advocacy Alliance
Our partners include nonprofit, government, academic, research, service, and industry organizations that believe collaboration is the key to positive change. Join us.
Rare Corporate Alliance
We are a coalition of rare disease industry stakeholders committed to collaboration between industry and patient communities to improve and expedite access to effective therapies for all rare patients.
Upcoming Community Events
Pericarditis Q&A Webinar event
December 5, 2023
Virtual
DetailsThe collective burden of childhood dementia: panel discussion on unmet needs and opportunities
December 5, 2023
Virtual
DetailsRAREly Told Stories Workshop
February 14, 2024
DetailsCureDuchenne FUTURES 2024 Annual Conference
May 23, 2024 – May 26, 2024
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DetailsImmune Deficiency Foundation 2024 PI Conference
June 20, 2024 – June 22, 2024
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DetailsCommunity Highlights

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